RD140 - Rare Disease Council – 2021 Report

Executive Summary:

The Rare Disease Council (RDC) is established in the Code of Virginia [§32.1-73.14] to advise the Governor and General Assembly on rare diseases. The Council is required to report to the Governor and General Assembly by October 1st of each year the following:

1. Activities and recommendations of the Council

2. Status of funding available to the Council, including grants applied for and received by the Council

Council members have been identified as outlined in the law. Formal appointments of council members by the Governor are in progress as of this report submission. The first Rare Disease Council meeting was held on Monday, September 27, 2021. This document serves as the required 2021 annual report.