The Rare Disease Council (the Council) is established in the Code of Virginia (§ 32.1-73.14) to advise the Governor and General Assembly on rare diseases. The Council is required to report to the Governor and General Assembly by October 1 of each year the following:

1. Activities and recommendations of the Council.

2. Status of funding available to the Council, including grants applied for and received by the Council.

The Council completed its first year of service to the Commonwealth on June 30, 2022. Throughout this period, the Council worked to understand and address its purpose, powers, and duties as defined by the legislation. This document serves as the required 2022 annual report to the Governor and General Assembly.